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Claire has a grand birthday

AN OLTON family raised more than £1,000 for charity at their daughter’s 18th birthday party.

AN OLTON family raised more than £1,000 for charity at their daughter’s 18th birthday party.

Claire Perkins has Niemman-Pick type C - sometimes known as Childhood Alzheimer’s. Since her diagnosis the family has received support from Niemann Pick Disease Group.

They decided they would seize the opportunity to give something back and were overwhelmed by the response from friends and family.

Claire’s dad Mark said: “We decided that instead of people buying presents they should make donations to the charity - who research the condition and support the people who it affects. It was a really enjoyable event and we’re very pleased to have raised so much money.

“I’d like to thank St John’s Hotel - we held the party there and they were very good to us. I’d also like to thank everyone who came along and were so generous with their donations.”

Niemman-Pick type C (sometimes known as NPC) is a rare, genetic disorder - it affects around 1 in every 150,000 people. The condition is caused by a build up of cholesterol in the brain and the symptoms can be similar to those caused by dementia.

If you would to know more about the disease go to www.niemannpick.org.uk.

 

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