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Group offers support for those with rare eye condition.

A LOCAL group to support sufferers of a rare medical condition - which means they’re unable to cry - has been relaunched.

A LOCAL group to support sufferers of a rare medical condition - which means they’re unable to cry - has been relaunched.

Last month the Solihull News told the story of Dorridge mum Helen Winkler who suffers from Sjogren’s Syndrome - a condition which causes painful dry eyes and blurred vision.

“When something upsets me I cannot cry, but I produce all the same facial expressions as if I was to,” said the 47-year-old, who was diagnosed in 1995.

“Chopping onions leaves my eyes really sore as the tears would normally flush out the stinging odour that the vegetable produces. I always have to get someone else to chop them, usually my daughters.”

The illness became life threatening for the mum-of-two when her unborn baby was given just a 30 per cent chance of surviving. Thankfully Helen’s daughter Rachel, now 18, survived after having a pacemaker fitted.

Birmingham Sjogren Group was set up to help other borough families in Helen’s position. The group had been running for a number of years and has recently undergone a successful relaunch.

Member Anita Gee, a fellow sufferer, said: “Sjogren’s Syndrome is a chronic condition which can affect sufferers for most of their lives.

“We are here to provide information and support, not just for sufferers but also for their families. The group offers ways to help cope with the condition and allows people to socialise and share their experiences.”

The next meeting will be at the Quinborne Community Centre, Ridgacre Road, Quinton on Saturday, October 27, from 2-4pm.

Everyone is welcome. If you would like to attend contact Anita on 07929095675. Admission costs £1.

 

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