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Shirley dad's fundraising mission goes on in daughter's memory

David Cameron and former Prime Ministers have backed a dad’s battle to find a cure for the crippling condition that claimed his daughter, dubbed The Butterfly Girl because her skin was so fragile.

Prime minister visits Perry Beeches III Free School in Birmingham - one of three new “free schools” that have opened in the city.
Prime minister David Cameron

FORMER Prime Ministers have backed a dad’s battle to find a cure for the crippling condition that claimed his daughter, dubbed The Butterfly Girl because her skin was so fragile.

Alex Hood was diagnosed with dystrophic epidermolysis bullosa (EB) when only a baby. She died in 2009, aged just 19, after the condition led to cancer.

She was named The Butterfly Girl because sufferers’ skin becomes as fragile as an insect’s wings.

Now David Cameron and three ex-PMs have added their support to Robin Hood’s tireless campaign to raise cash for research into the incurable condition.

Cameron, Tony Blair, Gordon Brown and John Major have autographed bottles of House of Commons whisky. It is hoped they will raise thousands for the cause when auctioned.

Robin, 55, originally from Shirley, said: “You can only buy this whisky in the House of Commons so they’re already unique, but to have them signed by the Prime Minister and former rulers makes them extra special.

“It’s taken me around three months to get the bottles signed and I’m sure that one day they will become collector’s items.

“I’ve already had bottles back from David Cameron and Tony Blair, while John Major and Gordon Brown’s bottles are ready for collection from their offices.”

Robin has visited Downing Street five times through his work with DebRA, which supports sufferers.

He has also gained the backing of ex-Harrods owner Mohammed Al Fayed and former US President Bill Clinton.

Robin hopes the money raised will one day lead to a cure for the condition.

He previously said: “On her deathbed, Alex made me promise that I would continue the work after she had gone, and so that is exactly what I have done.

“I want to help find a cure and one day I hope that will happen. A professor I spoke to recently said if he can get a certain amount of funding he would be able to do this within eight years.”

l For more information about the condition, log onto www.debra.org.uk. The auction will be held on September 20, at the Hilton in London’s Park Lane.

 

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