FRUSTRATED borough mums with disabled children are calling for the Government to improve local support for families with disabilities.
Solihull MP Lorely Burt is also backing the fight in Parliament after many local families have said they struggle to access basic services for their disabled children.
Disability charity Scope, which is running the ‘Keep us Close’ campaign, has found that 62 per cent of families with disabled children are not getting critical support such as childcare or nursery places, appropriate schools, essential therapies or even healthcare in their local area.
Eileen Fegan, who works as a volunteer at Scope’s Face2Face scheme in Solihull, has a six-year-old son, Sean, with cerebral palsy.
“It does get very frustrating,” the 42-year-old mother told us.
“For example my son requires specialised boots and in the past we have found it a real struggle to get these replaced.
“I have experience of the healthcare system so I have an idea of the people to go to but not everyone has that luxury. I know parents who have problems with gaining access to things like transport - it shouldn’t be this hard to access vital services.”
The Tidbury Green mum said parents would benefit from a central ‘hub,’ where families could go to collect the equipment and information they needed.
“If there is a central building where parents can go to get access to their equipment, for example new boots for Sean, it would make things a lot easier for everyone.”
Mrs Burt added: “It is unacceptable that so many families with disabled children have to battle to get the support they so desperately need. I know from working with Scope’s Face2Face scheme in Solihull, a befriending service for parents with disabled children, that the lack of local support services can lead to many families experiencing feelings of isolation and desperation.
“Making local services accessible to families with disabled children would do so much to improve their quality of life and give them the same opportunities many families take for granted.”